Lighting it up blue for Autism Awareness Month

Today we celebrate World Autism Awareness day. We celebrate our daughter, we celebrate those like her and those who support her. We raise awareness. We marched and let 3000 balloons go off into the air, cheering and celebrating, surrounded by others who live our life.

But it was her day.

She rolled down hills and chased new friends. She was overwhelmed and tired, but she made it without tears. She wanted to storm the stage when they took too long with the formalities and start the count down herself.

We took her to McDonalds and said yes all day. She played with her new favourite toys from Crayola; designing fashions for her dolls. She had spaghetti for dinner and eggy toast for breakfast, wearing her cowboy boots every single step.

It has been a journey. I hate the phrase, it’s overused and reminds me of a reality show contestant, crying on the stage when they have been evicted. We haven’t been evicted, but there has been tears. And overwhelming joy. It will be 2 years in July since we got a formal diagnosis, but 2 years in May since we started the process. It’s been a journey.

When she asked why we let the balloons go, I told her it was a symbol. So others would look up into the sky, see the balloons and wonder what it was about. Maybe they would google it and find the Autism Victoria website. Then they might look a bit further and find out what Autism is.

She understood that. She wanted to be the one to tell them. She was proud to be one of the 3000 odd people there today and knew that she fitted right in.

It was her day.

We love you Poss-moo,  more and more every single day. You are an amazing girl and you make us so very proud. It’s been a journey, but one that we are so pleased to take with you.

World Autism Awareness Day

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As you know, I was at Digital Parents Conference last week. While we were there, we heard the wonderful Darren Rowse (also known as ProBlogger) talking about Blogging for Social Good. He suggested we find a cause close to us and get behind them.

Well the twitter feed exploded; it couldn’t have been more timely, with Autism Awareness Month kicking off a few days later, and a number of other Aspie mums and I all had a thought… a link up to share our Autism Awareness (or Light it up Blue) posts to help raise awareness of Autism Spectrum Disorders.

You don’t have to be a parent of an Aspie or an Autie. Maybe your best friend is one, maybe you are one, maybe you teach one, love one or live next door to one. We would still love you to be a part of it.

So a link up born at DPCON12… and here it is. I would love, we would love, if you would write a post today, or tomorrow, or even in the next few weeks and link it up. I promise to comment on every single one of them and share them across my networks. Let’s turn it blue!

 

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Comments

  1. Kate Sins says:

    We love Poss too, especially my big boy who calls her the ‘lady with the smart {heart} on her nose’… Glad you had a great day. I would’ve loved to have been there. Next year for sure – no matter what.

    I have a post to write.

    xo
    Kate Sins recently posted..I must confess…some things this weekMy Profile

    • Renee says:

      We will save you a spot with us Kate. And don’t worry, we knew we have so much support around us, from those there and those that couldn’t make it. We are blessed. xx

      Can’t wait to read your post!

  2. jody says:

    Such a beautiful post Renee. I love yes days. So glad Poss had a great day and that you are doing the link up!! xx
    jody recently posted..The story I heardMy Profile

    • Renee says:

      Thanks Jody xx Sometimes a yes day is in order! Although we did say no to her storming the stage…. ;)

  3. Marita says:

    Thank you for the link up. :) Loved the cowboy boots, they are so cool.
    Marita recently posted..Why is passing the goal? An Autism QuestionMy Profile

    • Renee says:

      Thank YOU for linking up! And it was so lovely to see you and your gorgeous family again today, even if only briefly xx

  4. oh she looks like she really enjoyed her day! We love Poss!! We love you!!
    And we are here supporting you every step of the way!!

    such a beautiful post! xx
    Yvette @ DTlilsquirts recently posted..Sunday Sessions – Week 14 2012My Profile

  5. Twitchy says:

    Oh it sounds as though your gorgeous little lady had the time of her life! I’m so glad. Love the pictures too. I can only imagine how some of the kids were coping with all the colour and noise but I hope almost everyone did in fact have a great day.

    Thanks for doing this. So glad to have met you in person finally xx
    Twitchy recently posted..Lighting it up Blue for Autism Awareness Month 2012: Dear Red Shirt Scooter Boy (Updated)My Profile

    • Renee says:

      It was a full on day – and the disorganisation didn’t help, but the kids had fun and Poss loved letting all the balloons go. Thanks so much for your link up post too… I am heading there now to read it.

      And I feel super glad to have met you too, you are an inspiration! xx

  6. Natalie says:

    Beautiful post Renee! I wish I could’ve walked with you yesterday but was there in spirit and am very happy to hear that Poss had a lovely day. We love Poss too, sweet and amazing girl. xx
    Natalie recently posted..Light it up blue for World Autism Awareness DayMy Profile

    • Renee says:

      Thanks Nat – and love love love your post from this morning! Don’t forget to put it in the link up!! xx

  7. Wonderful post – as overused as “journey” is I think you shared it beautifully. I loved that she wanted to be the one to tell others.
    Deb @ Home life simplified recently posted..Simplify your life {Week fourteen: Time management – Planning}My Profile

    • Renee says:

      Thanks Deb! I wondered what other word to use… adventure, maybe? Who knows, it feels like an expedition some days! xx

  8. Hannah says:

    What fun!
    Some day when your lacking bloggy inspiration, I’d really like to hear about how you talk Autism with Poss and how she thinks about it.
    The people we talk to are pretty divided about letting kids know they are on the spectrum.
    oxox
    Hannah recently posted..Simply Sweet SundayMy Profile

    • Renee says:

      I would love to blog about that… there was lots of talk, but in the end we felt it was her life, her label – she needed to know.

      What have you done with it?

      • Hannah says:

        Our boys were diagnosed when they were very young, far too young to be aware of themselves in that way.
        So we’ve really only begun talking about it with the eldest now.
        It’s a controversial topic for our extended family (they still think our boys are being brats).
        We just give information at their level and only talk about the bits that affect them, that they understand.
        We know lots of adults with ASD, so when we talk we point to people on the spectrum that they admire and think of as successful.
        I don’t want our boys to create their identities out of a diagnosis, but I thing they might need the frame of reference as they grow.
        Hannah recently posted..Autism Awareness: Chats With MattMy Profile

        • Renee says:

          Thanks for this insight honey – we have a similar approach to you guys.

          I have blogged on it tonight, would love your opinion – as always!

  9. You are inspirational and so very beautiful off to share xx

  10. Madmother says:

    I have linked my linky post. Had the same idea last week, lol. But my post is from a very different perspective (the post itself, not the linky).
    Madmother recently posted..April 2nd 2012 – World Autism Awareness DayMy Profile

    • Renee says:

      Thank you so much for linking up today – I have also linked up to your post as well.

      Your story was just beautiful, something I don’t have to live – only having one – but I am so grateful to you for sharing it, as I know this is something that so many struggle with… xxx Big hugs xx

  11. Beautiful post. I’m so pleased you had such a wonderful day. Hopefully we can walk with you next year! xxx
    ps. I adore Poss’s cowboy boots…
    Amelia {Weddings, Babies… Everything} recently posted..A snapshot of our weekend… {A lovely Wedding}My Profile

    • Renee says:

      Thanks lovely – we would love to have you guys march with us! I am seriously considering making up some TEAM POSS t-shirts next year… there is going to be a crew I suspect!

      And the boots… yes, she loves those boots. As soon as the school shoes come off, the boots go on. Just another of her little quirks! xx

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  1. […] I’m joining a blog hop over at About a Bugg with Renee. Renee explains the idea came about at this week’s Digital Parents Conference (#DPCON12). The […]

  2. […] this April, just like last April, I will be marching. We will be marching. We will be talking about Autism and how people can […]

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